12 | SCI and Environmental Accessibility

Support from His Mother

Assessment

To enable appropriate planning of Mr. Wun's second period of rehabilitation, the rehabilitation team had to gain an accurate picture of his functioning.

Gaining a comprehensive picture of functioning is achieved during the assessment phase of the Rehab-Cycle®. In assessing Mr. Wun's functioning the rehabilitation team not only looked at his body functions and related ability to execute activities of daily living e.g. self-care, the multi-disciplinary rehabilitation team also considered Mr. Wun's participation in daily life and in the community, as well as possible contextual factors that facilitated or posed a barrier to improving Mr. Wun's functioning. The assessment results were documented using the ICF Assessment Sheet, a comprehensive overview of Mr. Wun's functioning state according to the ICF components of body functions and structures, activities and participation, and environmental and personal factors. See table 1. In addition to summarising the rehabilitation team's assessment results, it also documented information from the perspective of Mr. Wun, including statements he made about his functioning. In general, Mr. Wun's statements seemed to be consistent with the rehabilitation team's assessment of his functioning.

CS 12 2016 04 11 02 DB Seite 16

Table 1: ICF Assessment Sheet

Mr. Wun’s assessment revealed a list of problems, predominately in body functions and structures, that led to a range of ongoing or potential secondary complications:

  • Reduced breathing capacity, impaired cough and reduced movement of lung secretions (with increased risk of pneumonia) due to paralysis of respiratory muscles
  • Exposed tracheostomy fistula from the acute phase
  • Dysphagia i.e. swallowing difficulties due to the tracheostomy fistula
  • Increased risk of both aspiration (fluids entering the lungs) and pneumonia due to the dysphagia
  • Ongoing spasticity that resulted in pain, fatigue and sleep problems as well as increased risk of pressure ulcers and infections
  • Impaired urination and defecation functions
  • Impaired joint mobility and muscle power

Many of these body function problems exacerbated Mr. Wun's mobility difficulties i.e. in transferring, moving around in the wheelchair, and changing basic body positions as well as in self-care e.g. washing himself and toileting.

I need assistance to get into and out of the wheelchair...I can't go to the toilet.

Mr. Wun

Particularly difficult for Mr. Wun to deal with are the limitations related to food and eating, since he loved cooking and eating. While dysphagia continued to severely limit his ability to swallow food and eat, Mr. Wun's use of a U-cuff, an assistive device worn on the hand to hold items such a fork or spoon, helped to compensate for the paralysis in his hands.

The U-cuff was not the only environmental factor that were seen as facilitators. Other environmental factors that served as supports for Mr. Wun in daily life included his mother and housekeepers, an adapted house, and medication.

"In the first year after his accident Mr. Wun was completely excluded from community life, because the lack of accessibility in the community prevented him from leaving the confines of his home and property."

Mr. Wun also experienced some environmental factors as barriers to optimal functioning and to being fully integrated in the community. Among the most significant is the lack of accessibility in the community. This impacted not only his mobility, but also his ability to maintain friendships, work and participate in community life. For example, in the first year after his accident Mr. Wun was completely excluded from community life, because the lack of accessibility in the community prevented him from leaving the confines of his home and property. While the use of the internet and telephone allowed him some degree of connectivity with people outside of his home, this was less than ideal.

[My friends and I] still talk over the internet and by phone, but I can’t go out with them anymore. This is annoying sometimes. My friends are in Bangkok, and they come only twice a year.

Mr. Wun

The environmental barriers in the community, especially inaccessible modes of transportation, in addition to his mobility problems also restricted his ability to work outside of the home. He was, however, able to work from home using his computer to do translations for his former employer.

Overcoming the environmental barriers in the community was difficult, partly due to Mr. Wun's wheelchair. While the wheelchair enabled Mr. Wun to get around, thus a facilitative environmental factor, it also posed a barrier for Mr. Wun, since it was old and heavy. This was a unique situation in which the environmental factor was both a facilitator and a barrier at the same time.

Despite continued problems in functioning and barriers to fully participating in social and community life, Mr. Wun seemed to accept his situation. This was among several personal factors that supported Mr. Wun in finding ways to live as fully as possible in light of his spinal cord injury. In addition to being able to cope with his situation, he was unconcerned about how others perceived him. Furthermore, the fact that he earned an engineering degree from an Australian university assumedly facilitated the arrangements he made with his former employer regarding the translation work.

With a more comprehensive picture of Mr. Wun's functioning and the different factors that could support or hinder his rehabilitation, Mr. Wun and the rehabilitation team proceeded to the next step in the Rehab-Cycle® assessment phase i.e. goal-setting and determination of intervention targets.

ICF Research Branch CoordinatorICF Research Branch in cooperation with the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI)

Swiss Paraplegic Research
Guido A. Zäch Strasse 4
6207 Nottwil (Switzerland)


Tel. +41 41 939 66 31
Fax +41 41 939 66 40
www.icf-research-branch.org
www.icf-core-sets.org

Swiss Paraplegic Research © 2018 All Rights Reserved