16 | Time-Related Aspects

When More Time is Less

The aspect of time can have an impact on the lived experience of persons with spinal cord injury/disorder (SCI/SCD)  – on a person's independence in daily activities and participation in economic, social, and community life.

Read more: General Introduction

Stefan's Hobby – Playing the Panpipe

This is the story of Stefan, an adolescent born with spina bifida, a congenital condition affecting the central nervous system, who also incurred a traumatic cervical spinal cord injury (SCI). Stefan's case highlights how the aspect of time impacts his independence in daily activities and lived experience in general.

Read more: Stefan’s Story

At the beginning of the rehabilitation programme a comprehensive assessment was conducted to identify Stefan’s and the rehabilitation team's perspective of his functioning status.

Read more: Assessment

City Training

While the nurse, physical therapist (PT) and occupational therapist (OT) were responsible for most of the interventions during Stefan’s three-week rehabilitation programme, a number of intervention targets were also addressed by the physician, psychologist and other health professionals.

Read more: Assignment and Intervention

Evaluation

Shortly before Stefan's three-week rehabilitation programme ended, a final assessment took place to see whether the goals Stefan and the rehabilitation team set at the beginning of the programme were achieved.

Read more: Evaluation

While few studies have specifically explored the temporal aspects of living with a spinal cord injury (SCI) or a spinal cord disease (SCD), this case of Stefan, a person living with spina bifida and additionally with a SCI, highlights that the factor of time is an issue that persons with SCI/SCD, as well as others around the person, must grapple with on a day-to-day basis.

Read more: Discussion

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